I didn’t see this video until this week and I don’t remember recording it. I don’t remember much about that day, that week, or many of the things that happened in the months prior to this day, but my wife tells me this was the day I was told I had a brain tumor.
In this video I am explaining to one of my colleagues how to pick up the pieces that I left behind when I abruptly disappeared from my job. Apparently this was one of the activities that Julie and I used to pass the time during my first hospital stay along with coloring, walking laps around the nurses’ station, and watching cat videos on YouTube. Someone from work would ask a question via text and then Julie would record me answering the question, and collectively the group would decipher what it is I was trying to say.
Watching this video now is difficult. I don’t even recognize the person who is talking. I know it is me, but it doesn’t look or sound like me. It is uncomfortable for me to share this video but I am sharing it because I hope that people can learn something from it and from my experience. I hope that those who see this will make their health a priority and will trust the cues their body gives them when they notice that something has changed.
I’ve come a long way in the months since my diagnosis thanks to the work of a cognitive research team at the University of Rochester, and the various therapists I have worked with since my brain surgeries in November. I still have a long way to go but it is amazing to see how far I have come. There is no quick fix for the challenges I have faced and am facing. I hope that none of you are ever faced with something like this, but if you are just know that if you keep at it you can overcome anything.